Hydrocephalus Help

Having an emergency card, with pertinent information about your condition, and last doctor’s visits and lab/imaging results is important....

Hi everyone! Since the last time I posted, a lot has happened. I got into college!! I will be attending Johns Hopkins University to...

I just finished watching the Hydrocephalus Association’s celebration of the WALK to End Hydrocephalus and it just hit me that...wow,...

A humorous short story I wrote after a shunt series Lev did not particularly enjoy imaging days, but he didn’t particularly hate them...

This past summer has been a whirlwind of activity and pride behind the scenes. I had the pleasure and privilege of attending the...

Hi!  My name is Jacob and I am a special educator, musician, career coach and person who grew up with a learning disability (LD) due to a...

I've mentioned the HydroHelp Kits here on the blog, and I feel like I should make a blog post on them. A HydroHelp kit is an educational...

After a baby with hydrocephalus is born, they will go to a NICU [Neonatal Intensive Care Unit], where they will recieve any and all...

Hi everyone, It's been a while since my last personal post. It's pretty close to the middle of the school year, and summer planning is...

The Hydrocephalus Association offers eleven scholarships to college students, each of US $1,000. The qualifications and applications for...

En un infante (0-1 año) Ojos fijos hacia abajo, en puesta de sol/al atardecer Irritabilidad Vomitos intensos, fuertes/explosivos...

In an infant (0-1 years old) Sunsetting eyes Irritability Projectile vomiting Seizures Lethargy Bulging head, and rapid increase in...

At about 20 weeks in utero, doctors discovered an anomaly. I had hydrocephalus, as the aqueduct of Sylvius was blocked (that’s at the...

Here are some booklets about hydrocephalus, published by the Hydrocephalus Association (hydroassoc.org) Prenatal Hydrocephalus, a book...

Source: https://www.healthline.com/health/hydrocephalus#treatment In an infant (0-1 years old) Sunsetting eyes Irritability Projectile...

This is a condition that is usually diagnosed in utero, or via MRI or CT scans. It is characterized by enlarged ventricles of the brain....

Hello everyone! Welcome to my blog! I started this blog to talk about hydrocephalus by people affected by it. All of my contributors to...